Thursday, March 24, 2011

Happy Heart Anniversary Malkolm

It seems I'm on the quarterly update plan. I think I'm really on the fly by the seat of my pants update plan, if there is such a thing.

I'm actually starting a new blog here pretty soon -- so I don't know how much longer I will be posting here, if at all. Part of me wants to take all this down, but every time I go back to read it, I remember. And I think it is important to remember because time has a way of stealing details that are important and meaningful, and that need to stick around.

As far as Malkolm taking over the blog, I think I'm going to have to chalk that up to an idea who's time has passed -- because although he says he wants to, he really doesn't seem all that interested in taking it over anymore. But that's really okay by me.

I gotta say, it was a bit of a strain for him (and all of us), last year toward the end of our TV interviews and such. When the media started to be more concerned about how our story related to "health care" politics and not about a kid who with unwavering faith, was more concerned about helping others with helping himself.

Ahh, well. All that aside ... Today is the day. One year ago, my young 9-year-old son had open heart surgery. We were sitting in that room ... the room with the colors once so bright, now with a more muted palette and hazy edges as age takes it's toll on the clarity of my memory.

So much as happened since that day. So many life things, so many little miracles and big blessings ... so many amazing memories I want to etch in my heart forever -- I just can't even begin to describe my feelings about all of it (I know, that's a miracle in itself, eh?).

This now 10-year-old does battle his old habits of inactivity, and does struggle still at times, though not because of his heart, but moreso because of him not being in great shape. I keep reminding him that he is now going through stuff that many kids went through years earlier so it won't necessarily be an easy road ahead. Ironically, as he's learning how to participate in P.E. and other activity-types of things, he's realizing how he is unable to participate in P.E. and other activity-types of things just yet.

It's clear to me that he does need to stay hydrated, and he doesn't do a great job of drinking water all the time. It's clear to me that he really needs to exercise more and get into the habit of doing this at least 4-5 times per week, for the rest of his life, but he doesn't do as much exercise as he should. Right now, we're lucky to get two days per week in. Can't say that I set the best example in that regard.

However, things are definitely progressing in the right direction. And I'm okay with that.

Right now, Malkolm is actually sick -- he's not happy about having to miss school tomorrow, but it seems he's got pneumonia, so it won't just be tomorrow, it will probably be at least till next week. He's been working on a video project for his class, and he was supposed to present it on Friday, but I think he'll be missing that presentation. I don't know. We shall see I guess -- I was thinking there is a possibility I could take him to school to present and watch the other kids' presentations, but it just depends on how he's feeling. Going to play it by ear.

Once he's totally done with the video, I'll try to post it here, but I'm just not sure how big it is. I think it's about three minutes long.

For now, I just have to say that I'm just happy he's here. That all my kids are here. That my husband is here and that I get to benefit from all of that because I'm here too and we're together. And I mushy gushy love all of them. Thank you God for my family. Thank you for allowing me to feel this amazing unending waterfall of love and joy that you have provided through them to me. You ROCK.

What a year. What a year indeed.